International Myotonic Dystrophy Organization, Inc. (IMDO) Announces Congenital and Juvenile Myotonic Dystrophy Conference in Chicago, IL

September 16, 2008

The first ever conference for parents and professionals that concentrates on the Juvenile and Congenital Form of Myotonic Dystrophy

Sunland, CA (PRnine – September 16, 2008) – IMDO is holding its first conference on congenital and Juvenile forms of Myotonic Dystrophy at the Eaglewood Resort in Itasca, IL on Sept 20th-21st 2008. IMDO is expecting 100+ attendees for the conference. This conference will educate the parents, caregivers, and professionals. Additionally the Professional team is charged with development of standardized care guidelines to assist other professionals and parents.

Myotonic Dystrophy is a type of muscular dystrophy with an incidence of 1/8,000. It is a highly variable disease with some individuals highly affected and others only mildly.. The congenital form of the disease is generally passed from mother to child, and has an estimated incidence of 1/100,000

Children with the congenital form can have severe problems ranging from respiratory distress, mental retardation, learning disabilities, autistic tendencies, and many others. Because the mother is often moderately to severely affected, the disease has a large impact on families.

The conference features sessions on Education, Autism, Oral Motor, Medical Management, Social and behavioral issues, Research and drugs such as iPlex. More information and sign up details are on the website http://www.myotonicdystrophy.org under conference events.

Keywords: myotonic dystrophy, congential, Juvenile, conference, education, autism, oral motor, research

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Media Contact Information:
Richard Weston
IMDO
Richard.Weston@myotonicdystrophy.org
(760)470-0333 cell
http://www.myotonicdystrophy.org

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muscular dystrophy
09.17.08 at 8:53 pm

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